Ice Buckets, Challenged? Clarifying Donation Stats

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This summer, the ALS Ice Bucket Challenge videos went viral, largely supported by buzz about celebrity videos. I mean, who doesn’t wanna watch their favorite actor get soaked? And if the three GLORIOUS minutes of watching some hot guy get wet aren’t already good enough, it’s raising money for charity. What could possibly be the downside?

Soon enough, I found myself watching my own mother’s challenge video, in which I was finally nominated. We’ve all seen the kind of activism that spreads via social media, and the fact is, it usually doesn’t amount to much. So before I took that plunge, I took the time to read up on the concept behind it and the benefits provided by the influx of donations. It turns out, the ALS Association had reported $41.8 million donated between July 29 and Aug 21. Just eight days later, the organization reported that the amount received totaled $100.9 million. I’m no doctor, but I think any medical research will benefit from a donation that size.

Slacktivism accusations laid to rest, I happily nominated my uncles (Ahem—I have yet to see results, guys) and a local family doctor before having five gallons of ice water dumped on my head. All is well that ends well, as no one says anymore.

A couple weeks later, a respiratory therapist in the hospital where I work told me about an article claiming the majority of funds were used in salaries. I’ve seen the spreadsheet of charitable organizations whose use of donations are pretty questionable, but I just didn’t buy it in this case. The ALS Association isn’t the only foundation of that nature in the US, and the UK has their own version. The likelihood that a research foundation was misappropriating donations seemed a little unlikely. Still, I looked it up for myself.

The article originated on PoliticalEars.com, and made the statement that only 27% of the money is used for “the cause.” Regardless of the graphic posted in the article, taken straight from the ALSA site, the tone of the article implies that only 27% is going to anything related to the disease. So, I read the 22-page financial report produced by an independent auditor. And the multiple pages of information on the website. Here’s how it shakes down:

The ALS Association allocates a total of 7% to “Administration.” The rest are divvied up between research, fundraising, public and professional education, and patient and community services. All told, 93% of the funds received via donations are used for services of some kind. Regardless of whether or not the company intends to spend your personal donation on their salary, there are contingency options in the donation process. If you want to specify what area your money does or does not fund, you simply fill it out on the form. Already donated? You can submit an email to the association to clarify what purpose your donation was intended for.

Yes, the internet played a huge role in sending this fundraising activity into overdrive. Yes, it was a very simple and easy way to be involved in a charitable event. But while it may seem easy to draw parallels from this to other “Facebook activism,” that just isn’t the case. The ALS Association has more than doubled their received donations from last year, as have the other similar organizations. Let’s all just take a second to think about what medicine might be like in ten years because of this influx in cash.

ALS is a terminal diagnosis in which the patient slowly loses motor control, becoming increasingly paralyzed over time. This may be a year, it may be ten, but it will always result in the death of the patient. Prior to the recent events in ALS awareness, only about 50% of the population was aware of what the disease was. After the viral video sensationalism of the ice bucket challenge, there is a little more hope to unraveling the disease and finding more effective treatment. I just hope it’ll work again, on other causes, with similar success. We could change a lot in this world with results like these, and we should be trying, whether the video camera is on or not.

To learn more about the kind of research that may lead to these treatments someday, I encourage you to check out the ALSA website, which is an absolute cornucopia of information.

http://www.alsa.org/about-als/what-is-als.html

To read the article that sparked doubts, click here:

http://www.politicalears.com/blog/ice-bucket-fraud-als-foundation-admits-that-73-of-donations-are-not-used-for-als-research/?utm_content=buffer9af74&utm_medium=social&utm_source=facebook.com&utm_campaign=buffer

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Selfish Elsa: Figuring It Out

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When Disney was coming out with The Princess and the Frog, it seemed like everyone was talking about it. Reasonably so, I mean, Tiana was Disney’s first black princess. Still, I think all the hype was the primary reason I didn’t watch it, along with some petty annoyances I had about it. Like the idea that a 1920s Louisiana girl had a name like “Tiana.”

Then there was Tangled. I watched this one with my younger siblings and it was pretty cute. I thoroughly enjoyed seeing the male protagonist nailed in the head with a frying pan. Not for any real reason, just because it was fun. Both films were very well-received on the whole.

Overall, Disney has been slowly making their princesses more and more free-thinking and independent; their stories less and less about love being the sole motivator. Sure, Belle wasn’t the kind of girl who cared much what everyone thought about her, but it’s still a pretty typical fairy tale of a girl falling in love. In recent years, they’ve tried to give their princesses a story that doesn’t wholly revolve around getting married.

Then came Frozen, and everyone lost their shit.

Frozen has been touted as Disney’s best work yet. Lots of viewers saw it as an advance in feminism, encouraging girls away from the traditional love-at-first-sight concepts of princesses past. If you’re not familiar with the plot and don’t mind me throwing spoilers around, I’ll sketch it out. To skip ahead past the synopsis, move to the sub-header that says “The Reception.”
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Elsa and Anna are sisters, about three years apart. As kids, older sister Elsa’s cryokinetic capabilities manifest in an accidental injury she inflicts on Anna. In response, their royal parents take Anna to the troll king to be healed, where they also have her memory of the incident wiped. They discourage Elsa from using her powers and she recluses to her room, rarely interacting with Anna as they grow up. She begins to control her abilities to an extent, keeping from any more chilly disasters for a while.

After the predictably untimely death of the king and queen, Elsa’s coronation takes place. Anna meets Hans, a handsome and charming Prince of the Southern Isles. Within a couple of days, he proposes to her and Anna seeks the blessing of her big sis on the pending nuptials. Elsa, in a serious change from the Disney norm, tells Anna she cannot marry a man she just met. Whaaaat?

Anna is obviously unhappy with this answer. During the ensuing argument, Elsa exposes her abilities in an emotional outburst. Terrified of hurting someone, she flees the castle in an attempt to protect everyone in Arendelle, leaving in her wake an eternal winter. She wanders out into an isolated area, inadvertently bringing to life her childhood snowman, Olaf. The “Let It Go” scene unfolds as she builds herself a pretty little castle of cold, hard loneliness.

Anna seeks her sister out in an attempt to end the freezin’ season, with the assistance of Kristoff and his reindeer, Sven. As they approach, the full spectrum of Elsa’s very productive temper-tantrum is in view. Anna gains entrance to the castle, in which she tries to patch up the relationship. They come to terms with their argument and make up, but Elsa refuses to return to Arendelle and insists Anna leave her alone.

During Anna’s persistence, Elsa again lashes out, causing Anna’s heart to be frozen. As Anna and Kristoff are forced back out of the range of her sister’s frosty mood swings, her condition worsens. Kristoff takes her to his adoptive family who are, incidentally, trolls. They tell Anna that her only chance of thawing the ice in her heart is an act of true love, such as a kiss. Anna beats feet back to the kingdom for Hans, who turns out to be quite the gold-digging jackass. He refuses to kiss her and outlines his plot to get hitched, let her die and kill Elsa, taking the throne for himself.

Hans’ men retrieve Elsa by force, bringing her back to reverse the weather, which she is unable do. As Elsa escapes and unleashes a terrible storm, Anna and Olaf decide that Kristoff is, in fact, her true love, setting out to brave the blizzard and find him. Hans finally tells Elsa what is happening to Anna and in her stunned grief, the storm dies down, allowing Kristoff and Anna to see each other. Hans takes advantage of Elsa’s shell-shock to attempt a quick homicide, which Anna prevents by stepping in, just as she turns completely to ice. This act of—you guessed it—true love melts Anna’s heart, thereby saving the day.

Happily ever after ensues, Elsa figures out how to end the winter without melting Olaf, Hans goes to jail, and Anna gets what she wanted: a relationship with her sister, and a loving boyfriend in Kristoff.
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The Reception.

Elsa’s haphazard abandonment of restraint in the “Let It Go” sequence is enticing and the animation is nothing short of beautiful. In fact, the song has reached such popularity that it plays on the mainstream pop stations on a daily basis. The final plot twist in the end, in which Anna’s life-saving act of love is to save her sister’s life, has proved to be one of the most well received ideas in ages.

I’ve seen a lot of talk about the morals of the story, including allusions to the LGBT community and a wider understanding of what love is. But let me tell you what I learned from Frozen.

I learned that denial is never a lasting solution. You cannot escape your past by pretending it never happened, even if those affected have forgotten it. You cannot escape your faults and quirks by pretending they don’t exist, or by hiding them in your closet.

I learned that running away from your self is pretty tough. Turns out, you follow pretty close behind. Pretty much in your own footsteps.

I learned that people who really love you will come hunt your moody ass down and drag you back to your life, whether you like it or not, because no matter what you think is so terrible, it isn’t worth them losing you.

I learned that infatuation is not only different from love, but potentially dangerous. Putting your whole life’s trust into someone is a heavy decision, and making it before you know the person or against the admonitions of your family can be detrimental. Physically and metaphorically.

Most importantly, I learned that you can be yourself, but you have to find a way to do it that doesn’t hurt other people. In this generation of people treating each other like we live in a caste society and calling it “personality,” this is a lesson we all needed. I fully support the idea of being yourself and embracing who you are. I do not support the idea of treating others like garbage and saying that’s “just who you are.”

The big push when Generation Y was still in training pants involved self esteem. The mentality that everyone is unique, that everyone is a winner, that everyone is special… Those things are not inherently bad. They have, unfortunately, encouraged those kids to lack the empathy necessary to see how their unique may traits hurt other people. We’ve grown so accustomed to the idea that everyone should just accept us as we are that we’ve become incapable of accepting that “as we are” might not be the best “we” we can be.

As you are, you might be an intelligent person who gets things done, works hard, and tells people like it is. As you are, you might be an asshole. Yeah, we all have the power to make our own decisions but when someone treats you like dirt, it tends to affect those decisions.

Watch Frozen. Sing “Let It Go,” voluntarily or because you can’t help it. Incessantly ask people if they wanna build a snowman until they crack. Marvel at the amazing animation and, yes, be happy that Disney has come so far as to stop making every movie about same-day, boy-girl love.

Then go to bed, and as you’re having those drifting-to-sleep epiphanies, think about why you do and say the things you do and say. Think about how your “brutal honesty” was received and whether it was necessary. Think about how you can be yourself without hurting someone else.